Insurance Denied My Life-Changing Treatment (Spinraza)

Insurance Denied My Life-Changing Treatment (Spinraza)


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Isn’t medical insurance fun? Due to some unknown urinary reporting issues, Shane’s insurance has denied his ongoing Spinraza coverage. We believe we’ll resolve the issue, but these headaches with insurance are never-ending.

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Intro animation made by Pinkietoons! Check out her Instagram page to see more of her awesome work:

Shane was born with a neuromuscular disease called Spinal Muscular Atrophy that requires him to use an electric wheelchair. He is the author of several award-winning books, the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.

Hannah is a senior at Carleton College, studying sociology and anthropology. She works as a researcher for an educational consulting firm. Her future aspirations include attending law school and owning a goat sanctuary. She films and edits the “Squirmy and Grubs” vlog.

Shane and Hannah have been dating for 3 years and living together in Minneapolis for a year. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.